Patient Advocacy Group
Patient Advocacy Group
{Directory Results}
Alex's Lemonade Stand Foundation
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Alex's Lemonade Stand Foundation is an American pediatric cancer charity
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ALS United Mid-Atlantic
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To discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.
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Alzheimer's Association- Delaware Valley Chapter
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The Alzheimer’s Association Delaware Valley Chapter is the premier source of information and support for the more than 489,000 residents in DE, NJ and PA.
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American Association for Cancer Research
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The American Association for Cancer Research (AACR) is the world’s first and largest professional organization dedicated to advancing cancer research.
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American Cancer Society
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The American Cancer Society is a nationwide, community-based voluntary health organization dedicated to eliminating cancer as a major health problem.
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American Diabetes Association
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The American Diabetes Association (ADA) is the nation’s leading voluntary health organization fighting to bend the curve on the diabetes epidemic
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American Heart Association
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The American Heart Association is dedicated to the reduction of death and disability from cardiovascular diseases.
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American Liver Foundation
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The American Liver Foundation (ALF) is a national, voluntary, non-profit organization dedicated to the prevention, treatment, and cure of liver diseases.
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American Lung Association of the Mid-Atlantic
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The American Lung Association is the leading organization working to save lives by improving lung health and preventing lung disease
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Amyloidosis Foundation
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The mission of the Amyloidosis Foundation is to increase education and awareness of amyloidosis and support research towards a cure.
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ArmorUp for LIFE
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ArmorUp for Life is a women and minority-owned 501c3 advocacy and support organization that works to improve patient outcomes for those experiencing cancer
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Arthritis Foundation (Southeastern PA Chapter)
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The Arthritis Foundation is fighting for all people who live with arthritis.
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Bone Health and Osteoporosis Foundation
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Established in 1984, the Bone Health and Osteoporosis Foundation is the nation’s leading health organization dedicated to promoting strong bones for life
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Castleman Disease Collaborative Network
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The Castleman Disease Collaborative Network is a global initiative dedicated to accelerating research and treatment for Castleman disease.
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Clear Thoughts Foundation
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Clear Thoughts Foundation's primary purpose is to raise funds to discover drugs & novel therapeutics to stop the effects of dementia & end the disease.
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Community Liver Alliance
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The CLA is dedicated to supporting the community through liver disease awareness, prevention, education, advocacy and research
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Crohn's & Colitis Foundation of America
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The Crohn's & Colitis Foundation is the leading non-profit organization focused on both research and patient support for inflammatory bowel disease (IBD).
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Curing Retinal Blindness Foundation
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Support for children and adults that are blind or visually impaired, funding research to treat disease and connect those affected to resources.
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Dysautonomia International
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Non-profit advocating for people living with autonomic nervous system disorders by funding research, physician education, public awareness, patient empowerment
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Eastern Pennsylvania Bleeding Disorders Foundation
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Brings together those affected by bleeding disorders to feel a sense of connection and support through education, programming, advocacy, financial assistance
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Emily's Entourage
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Emily’s Entourage is a 501(c)3 organization that fast-tracks research for new treatments and a cure for rare nonsense mutations of Cystic Fibrosis.
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Epilepsy Foundation
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Their mission is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.
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EveryLife Foundation for Rare Diseases
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Empowering rare disease patient community to advocate for impactful, science-driven legislation & policy that advances lifesaving diagnoses, treatments, cures.
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For Pete's Sake Cancer Respite Foundation
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For Pete's Sake Cancer Respite Foundation enables cancer patients and their loved ones
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Friedreich's Ataxia Research Alliance
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The Friedreich's Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization
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Garrett the Grand - Batten Fighter
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The Organization focuses on spreading awareness and knowledge of the rare batten disease.
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Gaucher Community Alliance
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Gaucher Community Alliances’s (GCA) mission is to help all those affected live their fullest life and alleviate some of the burden
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GBS/ CIDP Foundation International
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The GBS/CIDP Foundation International is working for a future
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Hepatitis B Foundation
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The Hepatitis B Foundation is a national non-profit organization dedicated to finding a cure and improving the quality of life for those affected by hepatitis B
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KidneyCAN
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Action to Cure Kidney Cancer (ACKC) is a grassroots organization established in 2003 by kidney cancer patients and their families
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Leukemia & Lymphoma Society
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The mission of The Leukemia & Lymphoma Society (LLS) is: Cure leukemia, lymphoma, Hodgkin's disease and myeloma
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Leukodystrophy Newborn Screening Action Network
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we want to build partnerships across the dozens of leukodystrophy groups so we can work together
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Little Hercules Foundation
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Little Hercules Foundation works to improve the lives of those diagnosed with – and families facing – Duchenne Muscular Dystrophy
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Lupus Foundation of America
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The Lupus Foundation of America, Philadelphia Tri-State Chapter is part of a national force devoted to solving the cruel mystery of lupus
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National Ataxia Foundation
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NAF is a membership supported nonprofit organization established in 1957 to help persons with Ataxia and their families.
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National Blood Clot Alliance
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The National Blood Clot Alliance focuses on building awareness and building community among people who are affected by blood clots.
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National CMV Foundation
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The National CMV Foundation is a non-profit organization dedicated to eliminating childhood death & disability due to congenital cytomegalovirus.
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NephCure Kidney International Foundation
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NephCure Kidney International’s mission is to accelerate research for effective treatments for rare forms of Nephrotic Syndrome.
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NORD
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NORD is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.
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PA Breast Cancer Coalition
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The PA Breast Cancer Coalition is a network of breast cancer survivors and their families, staff, board of directors, volunteers and donors.
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Sick Cells
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Sick Cells' mission is to elevate the voices of the sickle cell disease (SCD) community and their stories of resilience.
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Simon's Heart
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The organization provides free heart screenings to children, advocates for life-saving legislation, hosts awareness events, and promotes research
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SoldierStrong
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SoldierSocks was originally incorporated under the Parent Name Start Now, Inc. (StartNow! Inc) on September 18th, 2009
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Susan G. Komen - Philadelphia
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Our Mission
To save lives and eradicate the threat of breast cancer for all people
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The Association for Frontotemporal Degeneration (AFTD)
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AFTD’s mission is to improve the quality of life of people affected by FTD and drive research to a cure.
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The Calliope Joy Foundation
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In 2013, Cal’s family started fundraising by selling cupcakes because they wanted to help children with leukodystrophy
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The Conley Cushing's Disease Fund
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The Conley Cushings Fund will support the creation of awareness materials for family and friends of those suffering with Cushings
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The Emily Whitehead Foundation
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We created the Emily Whitehead Foundation to help provide researchers with the funding they need to find less toxic treatments for pediatric cancer.
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The Rare Genomics Institute
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RGI is an international non-profit that provides access to cutting edge research technologies, physicians, and scientists across the globe
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Therapeutic Research Foundation, Inc.
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The Therapeutic Research Foundation, Inc. (TRF), a 501 c (3) non-profit organization
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Uplifting Athletes
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The mission of Uplifting Athletes is to inspire the rare disease community with hope through the power of sport.
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Wescoe Foundation for Pulmonary Fibrosis
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The Wescoe Foundation for Pulmonary Fibrosis provides support, advocacy and resources for patients and their families living with Idiopathic Pulmonary Fibrosis.
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Western PA Chapter, National Hemophilia Foundation
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We were founded to help meet the vast education and support needs of the bleeding disorders community in Western Pennsylvania.
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Life Sciences Pennsylvania was founded in 1989 by a biotech scientist at Penn State University. Today it has grown to represent the entire life sciences industry – medical device companies, pharmaceutical companies, investment organizations, research institutions, and myriad service industries that support the life sciences in Pennsylvania.